Join the Prion Registry, an online registry for people affected by or at risk for prion disease who want to find opportunities to participate in research.
Blog run by Eric Minikel and Sonia Vallabh, PhD students at Harvard Medical School and researchers at Broad Institute.
UCSF Memory and Aging Center
San Francisco based institute for neuro sciences.
- From La Trobe University- ‘Living’ brain slices reveal how nerve cells die
- Prion protein found in skin of Creutzfeldt-Jakob disease patients: NIH/Case Western Reserve University
- Article from The Times of Israel- Jewish New Year fruit may hold seeds of hope for brain disease sufferers
- Tedx Talk- Dr. Valerie Sim, how her curiosity brought her to discover a new way to bring science to a deeper level.
- A new article on Doxycline which we understand was found to be ineffective in prolonging life with CJD patients after several trails. Deana Simpson and I as co-chairs of the CJD International Support Alliance (CJDISA) will ask Professor Inga Zerr, who is a member of the Friends and Advisors Group of the CJDISA for an update. The full article can be found here: Doxycycline: bringing hope for early sporadic Creutzfeldt-Jakob disease patients